Authors
KL Shaw, TR Southwood, CM Duffy, JE McDonagh
Publication date
2006/4/15
Journal
Arthritis Care & Research: Official Journal of the American College of Rheumatology
Volume
55
Issue
2
Pages
199-207
Publisher
Wiley Subscription Services, Inc., A Wiley Company
Description
Objective
To describe the health‐related quality of life (HRQOL) of adolescents with juvenile idiopathic arthritis (JIA), and to examine the usefulness of the Juvenile Arthritis Quality of Life Questionnaire (JAQQ) in a UK context. It was hypothesized that HRQOL would decrease with worsening disease and disability.
Methods
Patients with JIA ages 11, 14, and 17 years were recruited from 10 major rheumatology centers. HRQOL was measured using the JAQQ. Other data were core outcome variables including the Childhood Health Assessment Questionnaire, demographic characteristics, arthritis‐related knowledge, and satisfaction with health care.
Results
Questionnaires were completed by 308 adolescents. One‐fifth had persistent oligoarthritis. Median disease duration was 5.7 years (range <1–16 years). The JAQQ was shown to have good psychometric properties when used in the UK, but was not without …
Total citations
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Scholar articles
KL Shaw, TR Southwood, CM Duffy, JE McDonagh - Arthritis Care & Research: Official Journal of the …, 2006