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The US Health and Human Services Secretary’s Advisory Committee on Heritable Disorders in Newborns and Children (AC), initially convened in 2004, began work at that time to determine which conditions to recommend for a national minimum uniform newborn screening panel. The role of the AC is to make recommendations to the Health and Human Services’ Secretary, who can subsequently add fiscal and political pressure to states to implement those recommendations. The AC initially examined the recommendations from the report from the American College of Medical Genetics Newborn Screening Expert Panel developed for the Health Resources and Services Administration (HRSA). This panel put forth an initial set of recommendations for inclusion of 29 conditions (and 25 secondary conditions detected in the process of screening for the core 29) for universal screening in 2005. 1 After a period of …