Authors
Catrin Griffiths, Ella Guest, Timothy Pickles, Linda Hollén, Mariusz Grzeda, Paul White, Philippa Tollow, Diana Harcourt
Publication date
2019/4/26
Journal
Journal of Burn Care & Research
Volume
40
Issue
3
Pages
312-326
Publisher
Oxford University Press
Description
Patient-Reported Outcome Measures (PROMs) identify vital information about patient needs and therapeutic progress. This paper outlines the development and validation of the CARe Burn Scale—Adult Form: a PROM that assesses quality of life in adults living with a burn injury. Eleven patients, 10 family members and 4 health professional interviews, and a systematic review informed the development of a conceptual framework and a draft measure. Cognitive debriefing interviews conducted with three adult burn patients, one family member, and eight health professionals provided feedback to ascertain content validity of the measure. The measure was then field tested with 304 adult burn patients. Rasch psychometric analysis was conducted for scale reduction, and traditional psychometric analyses provided a comparison with other measures. Further psychometric testing with an additional 118 adult burn …
Total citations
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