Authors
Marissa LoCastro, Chandrika Sanapala, Jason H Mendler, Sally Norton, Rachelle Bernacki, Thomas Carroll, Heidi Klepin, Erin Watson, Jane Liesveld, Eric Huselton, Kristen O'Dwyer, Andrea Baran, Marie Flannery, Benzi M Kluger, Kah Poh Loh
Publication date
2023/1/1
Journal
Journal of geriatric oncology
Volume
14
Issue
1
Pages
101374
Publisher
Elsevier
Description
Introduction
Older patients with acute myeloid leukemia (AML) and myelodysplastic syndromes (MDS) have worse survival rates compared to younger patients, and experience more intense inpatient healthcare at the end of life (EOL) compared to patients with solid tumors. Advance care planning (ACP) has been shown to limit aggressive and burdensome care at EOL for patients with AML and MDS. The purpose of this study was to better understand ACP from the perspective of clinicians, older patients with AML and MDS, and their caregivers.
Materials and Methods
We conducted semi-structured interviews with 45 study participants. Interviews were audio-recorded and transcribed. Open coding and focused content analysis were used to organize data and develop and contextualize categories and subcategories.
Results
Guided by our specific aims, we developed four themes: (1) The language of ACP and medical …
Total citations
Scholar articles
M LoCastro, C Sanapala, JH Mendler, S Norton… - Journal of geriatric oncology, 2023