Authors
Marissa LoCastro, Chandrika Sanapala, Jason H Mendler, Sally Norton, Rachelle Bernacki, Thomas Carroll, Heidi D Klepin, Erin Watson, Jane Liesveld, Eric Huselton, Kristen O’Dwyer, Andrea Baran, Marie Flannery, Benzi Kluger, Kah Poh Loh
Publication date
2023/5/9
Journal
Blood Advances
Volume
7
Issue
9
Pages
1871-1884
Publisher
American Society of Hematology
Description
Older patients with acute myeloid leukemia (AML) and myelodysplastic syndromes (MDS) experience intense inpatient health care at the end-of-life stage. Early advance care planning may improve care at the end of life for patients with AML or MDS. The Serious Illness Care Program (SICP) is a multicomponent, communication intervention developed to improve conversations about values for patients with serious illnesses. The SICP has been shown to improve the quality and frequency of advance care planning discussions. We adapted the SICP for delivery via telehealth to older patients with AML or MDS. We conducted a single-center qualitative study of 45 participants (25 clinicians, 15 older patients with AML or MDS, and 5 caregivers). Participants, whether clinicians, patients, or caregivers, agreed that the SICP would help older patients with AML or MDS to share their personal values with their care team …
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