Authors
Mary P Tully, Cecilia Bernsten, Mhairi Aitken, Caroline Vass
Publication date
2020/12
Journal
BMC medical informatics and decision making
Volume
20
Pages
1-13
Publisher
BioMed Central
Description
Background
There are increasing examples of linking data on healthcare resource use and patient outcomes from different sectors of health and social care systems. Linked data are generally anonymised, meaning in most jurisdictions there are no legal restrictions to their use in research conducted by public or private organisations. Secondary use of anonymised linked data is contentious in some jurisdictions but other jurisdictions are known for their use of linked data. The publics’ perceptions of the acceptability of using linked data is likely to depend on a number of factors. This study aimed to quantify the preferences of the public to understand the factors that affected views about types of linked data and its use in two jurisdictions.
Method
An online discrete choice experiment (DCE) previously conducted in Scotland was adapted and replicated in …
Total citations
20212022202320246331
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