Authors
EAF Dancet, L Ameye, W Sermeus, M Welkenhuysen, WLDM Nelen, L Tully, B De Bie, J Veit, H Vedsted-Hansen, KT Zondervan, C De Cicco, JAM Kremer, D Timmerman, TM D'Hooghe
Publication date
2011/11/1
Journal
Human Reproduction
Volume
26
Issue
11
Pages
2988-2999
Publisher
Oxford University Press
Description
BACKGROUND
Endometriosis is prevalent and women need high-quality care, which should be patient-centered. This study aimed to develop a valid and reliable patient-centeredness questionnaire, based on a defined concept of patient-centered endometriosis care (PCEC).
METHODS
A literature review, focus groups (FGs) with patients and an expert panel defined PCEC with 10 dimensions. The ENDOCARE questionnaire (ECQ) was developed. FGs resulted in 43 specific statements covering the 10 dimensions of PCEC, for which the ECQ measured ‘importance’ and ‘performance’. Medical and demographic questions and an open question were added. The Dutch ECQ questionnaire was piloted and reciprocally translated into English and Italian. Patients with endometriosis from Belgium, The Netherlands, Italy and the UK were invited to complete the ECQ online. Item …
Scholar articles
EAF Dancet, L Ameye, W Sermeus, M Welkenhuysen… - Human Reproduction, 2011