Authors
Gordon Milligan, Christian Cole, Antony Chuter, Jillian Beggs, Gillian Martin, Emily Jefferson, Blair H Smith, Lesley Colvin
Publication date
2023/10/31
Conference
Scotland's Health Research and Innovation Conference
Description
Aim
Alleviate is the data Hub for the Advanced Pain Discovery Platform (APDP). Alleviate’s aim is to break down data silos and provide secure access to pain data. Our aim was for Patient and Public Involvement and Engagement (PPIE) to be embedded from inception to ensure patients with lived experience of pain are central to the development of the Hub.
Methods
The Alleviate PPIE strategy was developed with patient partners to be open and inclusive. The lead patient partners are co-investigators on Alleviate and have been involved since the project’s design phase. The group consists of two lay leads and five people with lived experience of chronic pain who are actively involved in all Hub meetings and development activities.
Scholar articles
G Milligan, C Cole, A Chuter, J Beggs, G Martin… - Scotland's Health Research and Innovation …, 2023