Authors
Fiona A Miller, Mita Giacomini, Catherine Ahern, Jason S Robert, Sonya De Laat
Publication date
2008/12
Journal
BMC Medical Ethics
Volume
9
Pages
1-12
Publisher
BioMed Central
Description
Background
Research ethicists have recently declared a new ethical imperative: that researchers should communicate the results of research to participants. For some analysts, the obligation is restricted to the communication of the general findings or conclusions of the study. However, other analysts extend the obligation to the disclosure of individual research results, especially where these results are perceived to have clinical relevance. Several scholars have advanced cogent critiques of the putative obligation to disclose individual research results. They question whether ethical goals are served by disclosure or violated by non-disclosure, and whether the communication of research results respects ethically salient differences between research practices and clinical care. Empirical data on these questions are limited. Available evidence suggests, on the one hand, growing support for …
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