Authors
Ralf Tautenhahn, Kevin Cho, Winnie Uritboonthai, Zhengjiang Zhu, Gary J Patti, Gary Siuzdak
Publication date
2012/9
Journal
Nature biotechnology
Volume
30
Issue
9
Pages
826-828
Publisher
Nature Publishing Group
Description
To the Editor: The Feature in the February issue by Scott et al. 1 on the policy challenges of biobanking characterizes broad specimen donor informed consent as “ethically contentious.” A survey of public attitudes is cited. This same survey found that a significant percentage of individuals are prepared “to consent broadly to future research use and to forego additional choices as a result” 2. With our perspectives in patient advocacy or at research centers aimed at bringing new regenerative therapies to patients, we have consistently emphasized the value of research donors’ perspectives. In the context of protocols for creating immortalized cell lines for banking and distribution, we have also witnessed support for broad consent. Indeed, enthusiasm is even more pronounced among those touched by disease, and patient donors actually express concern that study-specific consent can be burdensome and impede …
Total citations
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Scholar articles
R Tautenhahn, K Cho, W Uritboonthai, Z Zhu, GJ Patti… - Nature biotechnology, 2012