Authors
Kay Shannon, Jed Montayre, Stephen Neville
Publication date
2021/12/6
Journal
International Journal of Qualitative Methods
Volume
20
Pages
16094069211055938
Publisher
SAGE Publications
Description
The voices of people living with dementia are rarely included in primary data collection due to cognitive challenges and the concerns of researchers and others about limitations associated with informed consent. This article presents a successfully implemented, step-by-step process enabling effective participation of aged care residents with dementia using a case study approach. Three methodological and critical steps in data collection were identified that led to the successful participation of residents with dementia in research. The process corresponds with, yet is uniquely different from the common elements in the qualitative research process. These are active participation during data collection, researcher familiarization with participants, and their set interval and time-lapse considerations (timeline). The process of involvement of people with dementia in research should proceed at a pace that is guided by the …
Total citations
202220232024192
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