Authors
Helen Francis, Jenny Carryer, Jill Wilkinson
Publication date
2019/9
Journal
Chronic Illness
Volume
15
Issue
3
Pages
197-209
Publisher
SAGE Publications
Description
Objectives
The aim of this study was to describe the experience of people with multiple long-term conditions with particular reference to the notion of the ‘expert patient’ in the context of self-management.
Methods
A multiple case study of 16 people with several long-term conditions, included interviews and contacts over an 18-month period and an interview with their primary care clinicians. Analysis included both case-by-case and some cross-case analysis.
Results
The findings reveal the patient participants had little capacity to exercise the agency necessary be an expert patient as premised. Weariness, shame, expertise, issues of compliance and control and collaboration are contested areas underpinning clinician encounters.
Discussion
Patient expertise is at the heart of self-management approaches but the findings surfaced several inherent contradictions between the idealised expert patient and their position …
Total citations
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