Authors
Laura Davies, Andrea Halewood, Elizabeth Jenkinson
Publication date
2021
Journal
Qualitative Health Research
Pages
1049732320983789
Publisher
SAGE Publications
Description
Congenital facial palsy is a rare medical condition that causes paralysis of the facial muscles, lack of facial expression, and an unusual appearance. Findings from developmental psychology suggest that the face plays a central role in the construction of self. Semi-structured interviews were conducted with 14 adults born with congenital facial palsy. Participant’s constructions of self across the life span were explored and a grounded theory of this process was constructed. Theoretical sampling was conducted with two parents of children born with the condition. All participants reported “struggling to make connections,” “experiencing invalidation,” and “struggling to regulate affect,” which lead to “constructing a defective sense of self.” Alternatively, “making validating connections” facilitated the process of “constructing a validated sense of self.” This study provides insight into the unique social and emotional challenges …
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